October 18, 2018 Beautifully Different, Children 0

Beautifully Different – Olivia

Beautifully Different

A Project Celebrating Differences and Triumphs

Olivia is Beautifully Different

Sweet beautiful Olivia is a amazing little 4 year old with Trisomy 21. The term trisomy is used to describe the presence of three chromosomes, rather than the usual matched pair of chromosomes. Olivia was born with three #21 chromosomes. Trisomy 21 is also known as Down syndrome. She also has cognitive and physical delays, as well as mild to moderate hearing loss. Olivia is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_Little girl_down syndrome

The Diagnosis

Something unique about Olivia, is that she is a twin! She, and her twin, were born at 34 weeks and the Neonatologist knew right away that she had physical signs of Down syndrome. He told us his suspicions right in the delivery room. Olivia spent 21 days in the hospital after birth. She had difficulty eating both because of her Downs and also her lack of endurance due to a congenital heart defect. She had a ventricular septal defect (VSD), atrial septal defect (ASD) and cleft mitral valve. Olivia came home with a nasogastric tube to assist with feeding so she could gain weight for surgery. She had open heart surgery at Nationwide Children’s Hospital to repair her heart on February 11, 2015. She was 6 months old. Olivia has had several smaller surgeries, including two sets of ear tubes, eye surgery to correct nystagmus, tonsillectomy and adenoidectomy.

A day in the Life of Olivia

Olivia attends preschool every day with her twin. They are in the same class. Olivia moves through her day with the rest of the kids. Sometimes, she gets a little distracted and sometimes she chooses not to listen as do most all children her age! She does not have many words yet,  so she works hard on effectively communicating with sign language and other physical and verbal cues that are unique to her. She participates in circle time, story time, play time, structured learning and play. So, to sum it up, her day looks much like any other 4 year old’s does!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_Little girl_down syndrome

Loving. Determined. Smart.

Like any other child, Olivia is one of a kind. She has a firecracker personality to match the fierceness of her red hair! Her little smile and almond eyes can brighten anyone’s day. She started walking when she was 3.5 years old. She is wildly independent, sassy, smart and resourceful. To underestimate her would be a mistake! She is capable of great things. With the help of her family, friends and amazing therapists, there is nothing this little girl won’t accomplish. Above all, Miss.Olivia is truly amazing!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_Little girl_down syndrome

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here!

About the Author

Kathy Rogers: A Michigan native but currently residing and working in Northeast Ohio. She married the love of her life at the ripe old age of 22 and they have two beautiful children as well as 2 dogs and 3 cats!

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