September 25, 2018 Beautifully Different, Children 1

Beautifully Different – Layla

Beautifully Different

A Project Celebrating Differences and Triumphs

Layla is Beautifully Different

Meet 8 year old Layla. When Layla’s Mom was pregnant with her she suffered a perinatal stroke. A perinatal stroke is a stroke that happens in the womb. A stroke can occur before birth, in infants, children and young adults. The risk of stroke is highest in the first year of life and peaks during the perinatal period (a few weeks before and after birth). Sixty percent of infants with a stroke diagnosis have specific symptoms such as recurrent focal seizures in the first three days of life. (Children’s Hemiplegia and Stroke Association) Layla’s stroke affected the left side of the brain and is complicated by seizures.

Layla is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_little girl_Purple dress_perinatal stroke_hypsarrythmias_AFO

The Diagnosis

Layla was diagnosed at 4 months. The stroke left her with right side weakness, speech delay, and difficulty comprehending situations. A month after she was diagnosed, at age 5 months, she developed seizures and a condition known as hypsarrhythmia. Hypsarrhythmia is a disorganized, chaotic pattern of brain waves that occurs in children with infantile spasms (IS) but not in other seizure disorders. Layla was in the hospital for two months because no medication could control the seizures and IS. The only option left was brain surgery to remove the damaged areas with a low survival rate. Her neurologist worked night and day to find an alternative. She did, ACTH injections. Within a week, she was improving and within a year the hypsarrhythmias stopped!  Layla continues to have seizures which have required hospitalizations but she is controlled now with medication.

A Day in the Life of Layla

Layla has therapy almost everyday. She has to work really hard, sometimes after a long school day. Unfortunately, she doesn’t get to have many after school activities or play dates but she has an amazing group of therapists. They make their sessions not only productive but fun and entertaining. Layla has limited function of her right hand and she wears a brace on her right leg during the day and a splint with a knee brace at night. She can’t run as fast as other kids or play on the jungle gym but she has a mean tennis swing!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_little girl_Purple dress_perinatal stroke_hypsarrythmias_AFO

Spunky. Loving. Determined.

Despite and because of all Layla has been through, she is a very strong, determined and empathetic person. Her therapists have said she will be CEO of a company one day with her great organizational skills and perseverance. Layla also has the biggest heart ever! She cares for everyone, young and old. She is the greatest helper around. She loves to clean (a parents dream!). Layla has a great memory of names, numbers and schedules. Her nickname is the “family memory stick”. Layla is such a beautiful and amazing little girl!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Elyria_little girl_Purple dress_perinatal stroke_hypsarrythmias_AFO

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here!



About the Author

Kathy Rogers: A Michigan native but currently residing and working in Northeast Ohio. She married the love of her life at the ripe old age of 22 and they have two beautiful children as well as 2 dogs and 3 cats!


1 Comment on "Beautifully Different – Layla"

  1. Kathy Jackson
    September 27, 2018 Reply

    Layla is a very determed little girl. I have known her since she was 18 months old. She is beautiful inside and out. She is funny and loving. She wants to help everyone. I am proud to be in her life and loved by her.


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