Beautifully Different – Kaylyn
A Project Celebrating Differences and Triumphs
Kaylyn is Beautifully Different
Meet Kaylyn. A spunky, resilient, and determined 4 year old. Kaylyn is a very special and amazing little girl. She was born with Symbrachydactyly. A condition where some of her fingers and toes did not form correctly. She is missing fingers from both hands and missing toes on both feet. She has had two separate surgeries on both of her hands. Her pinky, ring, and middle fingers were fussed together and she also had an amniotic band on one of her fingers. Her first surgery was to separate her pinky and ring fingers and to remove her amniotic band. Then her second surgery was to separate her ring and middle fingers. They grafted skin from her wrists to fill in the skin that was missing. She had to wear casts on both her arms (from her armpit all the way covering her hands) for 3 weeks while they healed. 6 months later she had it done again.
She really is Beautifully Different
Kaylyn has had delays in gross motor, fine motor and speech. She was a late walker, right before her second birthday. Her family sometimes has a hard time understanding her, which is frustrating for her. It is hard for her to hold a pencil the right way and hold onto small objects. She has made tremendous strides though and has come a very long way from where she was before! She definitely doesn’t let anything slow her down! Aside from her physical differences, Kaylyn is your typical 4 year old girl, she goes to school, and loves playing with her friends and family.
Our Little Unicorn
One thing that is especially unique about Kaylyn is that her condition is very rare! There are only 20-30 people, that they know of, with the same kind of limb difference as hers. Everyone else that they have tested has two genes within one chromosome that is effected. She is the only one that they know of with only one gene effected instead of two. So because of her they now know what gene causes this kind of limb difference. Which is amazing! Her family calls her their Unicorn!
For more information about the Beautifully Different project and how you can participate, click here.