March 21, 2019 Beautifully Different, Children 0

Beautifully Different – Calvin

Beautifully Different

A Project Celebrating Differences and Triumphs

Calvin is Beautifully Different

Meet Calvin! First of all, Calvin is an amazing sweet little 5 year old boy. Calvin’s diagnosis is Semi Lobar Holoprosencephaly. His brain is connected at the frontal lobe and he is missing half of the middle brain as well. Also, he has Spastic Quad Cerebral Palsey. He cannot sit, stand, walk or talk. However, he can army crawl! And his smile is infectious! Calvin is Beautifully Different!

Kathy Rogers Photography, Beautifully Different, Children Photographer in Elyria, Semi Lobar Holoprosencephaly, Spastic Quad Cerebral Palsey

The Diagnosis

Calvin’s parents learned of his differences 2 days before he was born (at 30 weeks gestation). He has has a complete left hip restoration, in March 2018.

Semi Lobar Holoprosencephaly

Sem Lobar Holoprosencephaly is a subtype of holoprosencephaly (a rare congenital brain malformation resulting from incomplete separation of the two hemispheres.) characterized by incomplete forebrain division. It is intermediate in severity, being worse than lobar holoprosencephaly and better than alobar holoprosencephaly.

Spastic Quad Cerebral Palsy

Spastic cerebral palsy is the most common form of CP, representing at least 70% of diagnoses.  Cerebral palsy is a group of disorders primarily affecting muscle coordination, balance and voluntary movement.  The neurological condition typically appears in infancy or early childhood, resulting from irregular development or damage to the part of the brain responsible for mobility.

A Day in the Life of Calvin

Calvin goes to kindergarten. Because his differences affect everything he does (as he cannot  sit, stand, walk or talk), shopping, feeding, bathing etc are all different then a typical life. Calvin uses a wheelchair to get around, and is dependent on his Mom and Dad to help him with his daily tasks.

Kathy Rogers Photography, Beautifully Different, Children Photographer in Elyria, Semi Lobar Holoprosencephaly, Spastic Quad Cerebral Palsey

Determined. Happy. Joyful.

Calvin is truly amazing. He is everyone’s friend! Also, he is so funny and knows what he likes and what he doesn’t. His smiles will make the darkest day bright and full of hope. Calvin is super smart and remembers people, places and his favorite part is his favorite show! Above all, he is motivated and determined to do things and get what he wants. In his mothers words “Calvin is our entire world and we have been blessed with a love most people only dream of.”

Kathy Rogers Photography, Beautifully Different, Children Photographer in Elyria, Semi Lobar Holoprosencephaly, Spastic Quad Cerebral Palsey

Would you like to book a session with Kathy Rogers Photography? Contact Us today!



About the Author

Kathy Rogers: A Michigan native but currently residing and working in Northeast Ohio. She married the love of her life at the ripe old age of 22 and they have two beautiful children as well as 2 dogs and 3 cats!


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