August 4, 2018 Beautifully Different, Children 0

Beautifully Different – Molly

Beautifully Different

A Project Celebrating Differences and Triumphs

Molly is Beautifully Different

Meet the beautiful, sweet, and incredibly strong Molly! Molly was born at 29 weeks gestation. This sweet girl has Periventricular Leukomalasia and Cerebral Palsy. Periventricular Leukomalasia (PVL) is a type of brain injury that affects premature infants. The condition involves the death of small areas of brain tissue around fluid-filled areas called ventricles. The damage creates “holes” in the brain. “Leuko” refers to the brain’s white matter. “Periventricular” refers to the area around the ventricles. Cerebral Palsy is a condition marked by impaired muscle coordination (spastic paralysis) and/or other disabilities, typically caused by damage to the brain before or at birth. Molly is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_little girl_ cerebral palsy_Periventricular leukomalacia

The Diagnosis

Molly had a rough go of it from the start, in addition to spending time in the NICU after she was born, she has had 5 surgeries on her eyes to correct strabismus (a misalignment of the eyes, inward or outward). Her family learned of her PVL while she was in the NICU, when they did an ultrasound on her brain and they found that she had spots on her brain. After a repeat head ultrasound she was diagnosed with PVL. At 9 months old, she was showing signs of high muscle tone and developmental delays, it was at that time that she was diagnosed with Cerebral Palsy.

A Day In The Life Of Molly

Molly requires assistance most every part of her day. She does not walk, needs support for sitting, help with dressing, toileting, playing, everything. She uses a gait trainer and a wheelchair to get around. It’s tough for her because she can’t do things like other kids can but she tries her hardest! Molly is verbal so she is able to express her thoughts, wants, and needs very effectively. She also eats on her own. Molly is quite the determined little girl, and her smile is incredibly infectious!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_little girl_ cerebral palsy_Periventricular leukomalacia

Silly. Smart. Thoughtful.

Molly is amazing. Her Mom Says that Molly’s mind blows her away and she is so proud of how smart she is, how loving she is, and how she loves to have fun in life. She has come so far in the past 5 years and strives to be involved in all that she can be! Molly attends the same school as my daughter does, and long before I had the pleasure of meeting this sweet girl, I took notice of how happy she was all the time! Always a smile on her beautiful little face! Molly is such an inspiration!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_little girl_ cerebral palsy_Periventricular leukomalacia

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here!



About the Author

Kathy Rogers: A Michigan native but currently residing and working in Northeast Ohio. She married the love of her life at the ripe old age of 22 and they have two beautiful children as well as 2 dogs and 3 cats!


0 Comments on "Beautifully Different – Molly"


Would you like to share your thoughts?

Your email address will not be published. Required fields are marked *

Leave a Reply