Beautifully Different – Landen
A Project Celebrating Differences and Triumphs
Landen is Beautifully Different
I am so excited to introduce you to Landen! Landen is an amazing 9 year old boy, who has beat leukemia TWICE… before the age of 2! He also has Epilepsy, Lennox Gastout Syndrome, hydrocephalus, severe developmental delays, sleep disorder, bowel issues, and eating issues. Despite all this, he is amazingly sweet and has such a wonderful and supportive family. Landen is Beautifully Different!
It all started when Landen was about 10 months old. His parents noticed there was something wrong with his right eye. he was soon dignosed with Acute Myeloid Leukemia. Landen had a tumor laying above his right eye, he did 6 months of chemo.Unfortunately, when he was 22 months old another tumor formed in the back of his head pushing on his brain and blocking his ventricles allowing the fluid to circulate from his spine to his brain causing him to stop breathing when he would fall asleep. He did another 6 months of chemo, along with full body radiation and radiation directly to his head. He had to have a bone marrow transplant to save his life. During this time he to re-learn how to turn his head, how to sit up, hold a cup, and he had to learn how to walk again.
After he went into remission he had new battles he had to overcome. He had lost his ability to talk, it took him a year to learn to walk again, his family then found out Landen had epilepsy. Trying to find the right medications over the last 7yrs to help treat and control his seizures has been really tough on his little body has put him on hospice care twice. They just recently received a diagnosis for his seizures, Lennox Gastout Syndrome, and they’ve been told they don’t have many options left to help control his seizures.
A Day in the Life of Landen
Daily life can be exhausting with Landen as he is unable to do anything for himself or on his own. He has seizures several times a night which wake him and can cause him to potentially suffocate so the second his parents hear a noise they have to make sure he’s ok. He receives water through his g-tube when he doesn’t want to drink. When he doesn’t eat meals they have to supplement and give him formula. Landen doesn’t really have a way of communicating as a typical child would, he just got his first communication device and is still learning how to use it. In his mother’s words “We didn’t get a manual on how to handle life but somehow we’ve figured it out and everyday is a new learning experience. He needs help with everything and what most take for granted I pray for all the time.”
Loveable. Courageous. Amazing.
Through everything this little boy has been through he always has a smile on his face. His laugh is so contagious and can brighten anyone’s day. He loves to watch sports, music and play with cars and most of all he loves the water and swimming. Landen inspires people to never give up. He may be different but he’s absolutely amazing and perfect in every way!