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Beautifully Different – Camden

Beautifully Different

A Project Celebrating Differences and Triumphs

Camden is Beautifully

I am so excited to introduce this amazing little guy, Camden! Around 11 weeks old his Mom noticed two inguinal and one umbilical hernias. (an inguinal hernia occurs when tissue, such as part of the intestine, protrudes through a weak spot in the abdominal muscles, and an umbilical hernia occurs when part of the intestine protrudes through the umbilical opening in the abdominal muscles)  They went to several doctors who kept telling them it was colic. Thankfully, they found a Ccf doctor who listened. He repaired his hernias at that time and post surgery he was a happy baby! Camden was 5 months when he got the diagnosis of torticolis (a dystonic condition defined by an abnormal, asymmetrical head or neck position), upper body hypertonic (a state of abnormally high muscle tone) and lower extremity hypotonia (a state of abnormally low muscle tone).  Camden is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _torticolis And that’s not all…

When Camden was 1, he was not able to put any weight on his lower extremities. After a consultation with an Orthopedic surgeon, he found he had left complete hip dysplasia. Camden had three surgeries a month apart at 13 months old. Unfortunately, in December 2017 they were given the news the hip joint failed and was reversing. He was given the choice to let it be (and plan on a extremely sedentary life) or under go a dega actebuloplasty. January this year Camden underwent the procedure and was discharged home in another spica cast, for 10 weeks. On top of all of that Camden was diagnosed with Celiac Disease when he was 1. Around that time he also had several months of speech therapy, because he was delayed. However, he worked really hard and now he talks and talks!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _torticolis

Enthusiastic. Funny. Caring

As Camden’s Mom told me “I know every parent says this but I don’t know what I would do without him. He needs me but I never realized how much I needed him. Camden is my “stinka butt.” He makes me laugh daily with either his facial expressions or his statements his says. Camden has worked so hard to get to where he is and if you didn’t know about his hip you probably wouldn’t even notice. He is just so sweet and kind. He has made my life so much better.”

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _torticolis

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here


Beautifully Different – Sydney

Beautifully Different

A Project Celebrating Differences and Triumphs

Sydney is Beautifully Different

Meet the beautiful and spunky Sydney! Sydney was born a whopping 12 weeks early! She spend over two months in the hospital when she was born at 28 weeks weighing just 1 pound 15 ounces back in December of 2012. Sydney has developmental delays but no official diagnosis at this time. Her primary care doctor as well as her occupational therapist believe that she has sensory processing disorder and possibly Attention Deficit Hyperactivity Disorder (ADHD). ADHD is defined as a brain disorder marked by an ongoing pattern of inattention and/or hyperactivity-impulsivity that interferes with functioning or development. Sydney is currently on a waiting list to explore the possibility of a mild autism diagnosis. Sydney is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Autism_ADHD

Sydney’s Differences

Sydney’s differences have come to her family in bits and pieces over the years. She wasn’t hitting milestones as she should for her age since birth and so there have been rounds of physical therapy for her gross motor skills and more recently occupational therapy as well as speech therapy services. Her Mom says it sometimes seemed like they never left a doctors appointment with good news, or a simple ‘she’s doing great…’ For them it’s always been about the next or newest concern or another hurdle to jump.

A Day In The Life Of Sydney

Sydney has trouble with outside stimulus in her everyday life. She is very sensitive to sound especially and she wears headphones at home at some point every day to help her cope with sensory stimuli. Sydney has trouble with certain textures touching her skin (so clothing can sometimes be a problem, tags, seams etc). Something that triggers a sensory problem with her can often lead to a major melt down resulting in the need for complete “shut down” (which for us means , headphones, no lights, closed curtains, zero verbal communication, or in some cases she seeks blanket cocooning and spinning to relax).

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Autism_ADHD

Sensitive. Sassy. Joyful.

In her Mom’s words- Sydney puts in more hard work than she think it’s acceptable to ask most kids her age to do. Through her therapy services and school routines she has proved that it may take a while but she has the ability to adapt. Through all of the work and sometimes struggles Sydney is the light of her families lives. She is showing them how to navigate a world that she needs to process much differently than we do. She is leading them through. Sydney is an amazingly sweet little girl who will crawl right in to your heart the moment she meets you! She has the most beautiful big blue eyes and amazing little laugh!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Autism_ADHD

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here


Beautifully Different – Leah

Beautifully Different

A Project Celebrating Differences and Triumphs

Leah is Beautifully Different

I am so honored to introduce you to this amazing little girl. Meet Leah,who has Trisomy 21. According to Stanford Children’s Health, the term trisomy is used to describe the presence of three chromosomes, rather than the usual matched pair of chromosomes. Trisomy 21 is also known as Down syndrome. Leah spent nearly 2 months in the hospital after birth before being able to come home for the first time. She’s had a few hospital stays since then for scheduled procedures and surgeries, the most major of which was open heart surgery in June 2018. She made an incredible recovery having spent only 3 nights in the hospital. She doesn’t even realize it, but at her young age she teaches us about patience, perseverance and resilience. She’s small but undoubtedly mighty.  Leah is sweet, and loving, and Beautifully Different.

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Down Syndrome_heart surgery_red tutu

The Diagnosis

Leah’s parent’s suspected she had Trisomy 21 at birth. Leah’s Mom described this time in their lives so beautifully.”A lot of days kind of blurred together, far too many of which were spent in the hospital. So many emotions flooded us during that time. We were in shock about the diagnosis and our daughter’s abundant medical needs. We faced fear about the future, and we spent a lot of time with tears streaming down our faces. But one day in the hospital, my husband and I just looked at one another and decided that although this journey may be different than we expected, it’s ours and it’s beautiful. From there we never looked back. Some days are harder than others, but the joy and laughter that Leah brings outweigh the tears that once burdened us. She inspires us every single day.”

Leah’s Schedule

A typical week for Leah generally includes 2-3 therapy appointments, and often times one or two doctor appointments. Down syndrome tends to impact a child’s global development, so Leah requires therapies to help her learn new skills that other children may be able to acquire more readily on their own. Because of her heart condition as well as her oral motor development, she has had difficulty learning to eat orally, so she receives much of her nutrition through a G-tube while we work towards helping her learn to eat by mouth. Although some aspects of her daily life are different, a lot are very similar to other children her age. She loves laughing, smiling, listening to and dancing to

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Down Syndrome_heart surgery_red tutu

Loving. Joyful. Fighter.

Leah has amazed her family with her ability to pick up on basic sign language to communicate her wants and needs. She loves asking for a drink of water, requesting books, and asking for music. She understands that these signs allow her to communicate and that’s been really motivating to her as she grasps new concepts. Leah is also very laid back and loving. She enjoys being around Mom and Dad and affectionately blows kisses to those she loves. She brings so much joy to their lives every single day!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little girl_Down Syndrome_heart surgery_red tutu

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here


Beautifully Different – Wyatt

Beautifully Different

A Project Celebrating Differences and Triumphs

Wyatt is Beautifully Different

Meet Wyatt! Wyatt is a super sweet 3 year old boy who was born with Ocular Albinism. Ocular Albinism is a genetic condition that primarily affects the eyes. This condition reduces the coloring (pigmentation) of the iris and the retina. Pigmentation in the eye is essential for normal vision. Having ocular albinism comes with other problems, little Wyatt ended up getting diagnosed with Nystagmus as well. Nystagmus is where the muscles aren’t strong enough to control the movement of the eye, causing the eyes to consistently move up and down, and side to side. Wyatt is Beautifully Different!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _ocular albinism

The Diagnosis

At 3 months old, Wyatt was diagnosed with Ocular Albinism. Ocular Albinism is diagnosed by an optometrist or an ophthalmologist during a routine eye exam, when a doctor looks inside the eye with special lights and instruments. Wyatt’s parents noticed right at birth that he had uncontrollable eye movement, but thought it was just the usual eye movement of new babies. Also, Wyatt has had to undergo two surgeries to control his Nystagmus. As a result, he eye movement has greatly improved! His eyes still move a little back and forth, but it is barely noticeable!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _ocular albinismPerfect. Blessing. Loved.

Wyatt is the sweetest little man ever. Above all he is the most kindhearted, sweet, brilliant , loved and beautiful little 3 year old! He was a little nervous at first when he arrived at the studio but those nerves quickly dissolved! He was outgoing and talkative! I could see the incredibly and loving bond that he and his Mom share. She is definitely a warrior for him and he is so very lucky to have such an amazing and loving family behind him! Certainly, he will amaze everyone he meets!

Kathy Rogers Photography_Beautifully Different_Children Photographer in Amherst_Little boy _ocular albinism

For more information about the Beautifully Different project and how you can participate, click here. To follow me on Facebook click here